434. Memory problems…..

and muscle aches!

I’ve been having a lot of muscle aches and pains lately, and memory lapses. It’s starting to worry me. I’d kind off switched from zopiclone to diazepam at night. Above the recommended dose off course. No one seems to care, that I’m a drug addict, off sorts. They just keep prescribing benzos and Z’s without question. I’m digressing.

Anyway I reckon the diazepam was/is causing the muscle pains. I’ve gone off it anyway after one horrendous, almost out of body, night terror experience. I woke myself up screaming! Had the worst realistic nightmare I’ve ever had. Was physically shaking, heart racing upon awakening. It scared me. Zopiclone has never done that.

As for my memory, I put things down and instantly forget. I walk into rooms and don’t know why? Today topped it all. I was chatting to my neighbour and her doggy over the fence. I talk to Flynn (doggie) daily. Today though, I could not for the life off me, recall his name.

Like I said, I’m worried.

Loopy x

432. It’s not just me……..

I’m not the only one in this house who suffers from depression. This past few years, I’ve probably made things all about me. I’ve been the one in and out of hospital. I’ve been the one who cries, complains off stress, anxiety and unstable moods. I’ve been the one under the care of a community team (well I used to be.. I couldn’t call it “care” over here).

The reality, one that I’ve known for some time is that it’s not just me who suffers. OH has struggled too since the arrival of little man. OH is always tired, distant and short tempered. His mood affects mine, and more worryingly our moods affect little man. OH snaps and swears and withdraws. He exhibits most off my symptoms.

It’s not fair on him, it’s not fair on me and it’s not fair on little man.

I’ve been selfish, but if we’re to survive as a family, it’s time we addressed the elephant in the room.

Loopy x

431. Loopy’s Lodge

It’s taking shape. I’ve never in my life built anything from wood, so despite the somewhat wonky roof, I’m rather proud of this. I’ve been at it all day today. It’s kept me focused on something, and is proving to be a great distraction.

I need all the distractions I can get. I had my psychology assessment this week. They rang me back quickly after, saying that I needed 1 to 1 therapy. Here’s the kicker though… the waiting list is apparently 9 months from now.

I’ve been home a year. All my notes and treatment reccomdations came with me. Yet I wasn’t actually referred until about 4 weeks ago. I’m seriously considering launching an official complaint. No wonder suicide is so devastatingly common here……………………

Just keep building loopy!

Loopy x

430. A busy week

This week my niece (9) and nephew (5) are up staying with us. What have I let myself in for!! In truth, they are very good kids, well mannered and great with little man. But the noise, oh my god the noise!!! They are most definitely the loudest kids in Ireland!!!

Noise is something myself, OH and little man struggle with. Especially little man, who often holds his hands over his ears. I’m still concerned about him, to be honest. He’s very very sensitive to noise and I swear he has OCD. Can a child off 3, have OCD?

In other news, I’ve been building… Base frame and 1 wall frame done, with other timbers cut ready for assembly. I’m actually really enjoying this carpentry malarkey. Who knows, I may quit academia and live the quiet life, building crap out off wood, and selling it at a loss (proper stuff is quite expensive)

Finally, I have my psychology assessment tomorrow. I’ve no idea where to start or what my priorities are. I’m hoping it’s quite a structured chat. I’m nervous. What if they say; ‘you’re not suitable?”

I’m terrified off lockdown easing, I’m scared little man is damaged, I’m self harming, using diazepam in excess at night, abusing Orlistat and generally, I’m just messed up.

Where should we start………

Loopy x

427. Psychology!!!!!!!!

I’m in shock. I thought it would never come but almost a year now, living back home and finally, I’ve received a psychology assessment appointment. July 8th over the phone.

Is it weird that I was almost excited, reading the letter.

Let’s hope this is the start of something that will ultimately be positive. I do worry a little that I’ll feel worse first.

Loopy x

426. Social anxiety.

So the shops are now open and people are going friggin crazy, piling up clothes and underwear and homeware and all manner of crap. It’s insane.

I wandered out today for the first time in ages. Apart from my weekly jaunt to the pharmacy to collect my cocktail of meds, I’ve stayed pretty much hidden away from the world. Today has reaffirmed that I wish to stay hidden away forever.

As I walked up the street, entered shops and stood in queues, I could feel a 1000 eyes on me. Real or imagined, it doesn’t matter, the feeling is the same. I felt strange, uneasy and anxious. I wanted to run home, literally run, but I resisted.

Once in the door I reached for my diazepam and a huge tub off ice cream.

I’m eating Orlistat like smarties these days, and especially on days like this………….even though I cycled 21km this morning.

I need therapy, I need help, and I’ve no idea how to get it? I want to talk to someone. I’m bottling up all my insecurities, worries and stress again. My new key worker/CPN is possibly very nice, but I can’t pick up the phone and call her. I don’t know her, or trust her yet. The very first time we spoke, she said she’d check in again in a month, so roughly 2 more weeks to go. How is that helpful?

Come on loopy, your not a child. It’s not up to others to check on you, probe you, or read between the lines. Take control for gods sake!!!!!!!! you useless whimp!!

I feel an explosion coming

Loopy x

425. Malin head to Mizen head.

I’ve not had the motivation to cycle lately.  I’ve been lazy, lethargic and just blah  

Work wise we are operating through MS teams and I know some of my colleagues like to cycle so I’ve set us a challenge. 

How fast can we as a group cover the length of beautiful ireland.  I’d kind off forgotten we’re all in academia, which means that we’re quite a competitive bunch. 

The race is on to do the 581 km, not just as a group, but Individually!!!

Hell yeah, I’m competitive!! It’s just what I needed to get me pedalling again.  16km down, only 565 to go!!

Loopy x

423. Why do I do it to myself.

I’ve been struggling. In truth I’m stressed with work,and when I’m stressed, I quickly lose my ability to cope.

OH is working a long day, so it’s just been me and little man. I found it hard to cope. I shoved my eyepad before his eye as much as I could. I avoided him, I grew frustrated with him, and in turn he grew whiney, and clingy.

Its not his fault, it’s mine. So this evening I’ve given in to temptation, I’ve done what I needed to do, to get me through today.

It hurts now. Why do I do this to myself.

Loopy x

419. Red in the face..Literally!!

What happens when you mix glorious sunshine, with quietiapine and albinism??
Lobster Loopy, that’s what   I went for a bike ride today, but stupidly forgot to apply my factor 50.  I’m growing redder by the minute.

The worst part is scorching the backs of my hands as any movement at all stretches and pulls at the skin.

34 odd years with albinism and a few years on quietiapine, you think I’d know better.

On a side note, I’m really really really missing C and L today. I had my first phone contact with my new care coordinator this afternoon.  They prefer the term key workers over here.  I think it’s because the title of care co-ordinator could be taken up with trading standards!!! They coordinate f$%k all. 

To quote directly I was told” it’s not like I’ll be ringing you every week, I’ll review you in a month”

Can please please PLEASE have L or C again……

Loopy x

418. The black dog.

He’s been sniffing around today I can’t explain it, but my body feels tense and on edge. My mind feels useless and scatty. My future looks hopeless and worthless.

I hate when I feel like this. I want to buy pills, I’m toying with self harm. I’ve thrown up. I’m slipping somewhat and it scares me.

Just go to bed loopy. No buying pills, no self harm, no undoing the progress you’ve made lately.

Just go to bed!!

Loopy x