447. Counselling.

I’m back in counselling. 6 sessions I’ll get and then will just stay on the waiting list for proper psychology. I like her, which is good. I instantly liked her, but she’s set me some homework.

1.Practice mindfulness when you’re not stressed. Practice everyday!!

2. Notice what anxiety feels like in your own body. What does it do to you?

I’ve failed on point 1 today, I’ve not practised. On point two, my mouth dries like the Sahara, my mind bounces from thought to thought irrationally, my chest and jaw tighten and I twitch. Lots of little involuntary muscle spasms.

Loopy x

446. Face to face again.

I’m a lecturer in case you’ve not been a long time follower. I’m a socially anxious, highly self conscious, paranoid being, but I took up this profession when my confidence was high. It’s odd really, walking into the room, I’ll feel a thousand eyes on me, my body will be trembling, and then I’ll do my little routine. Log in to the pc, take a sip off water as I stroll around my “stage” all non chalant. I’ll gaze at the crowd as if I’m counting them, but I’m not really.

Then boom; “ok folks we’ll make a start” it’s my usual opener, and something odd happens. My work persona kicks in and I act my ass off. I act confident and knowledgeable, I act professional and calm. I’ll field questions with a smile and speak happily with those odd few who always stay behind to probe further. I’ll get through it, and once done, I’ll take a huge breath and steady myself, for real this time. A cup of tea will be needed.

Tomorrow’s a short module intro talk, but I’ve not been in front off a crowd like this since March. Tonight I’m feeling grotesquely fat, ugly all over, and paranoid they’ll quickly realise I’m a mess. Time to hit the gym hard again. Time to up my Orlistat.

Thank goodness most of my teaching this year is remote. Just get through tomorrow loopy.

Let’s get some sleep, 15mg tonight I think, you’ve an early star

Loopy x

445. Mortality

I’m going to die young.

Regular self burning , will one day give me skin cancer. The repeated damage and neglectful care, don’t help. With skin cancer though, I guess you have a fighting chance.

Then there’s my drug use, prescribed (although I’m forgetful with it) and the non prescribed. Taking higher doses of zopiclone nightly and now using my built up stash of Valium to manage stress {work mostly] and sometimes to help stay calm with little man

The problem with all these drugs, is they are processed by our livers and our kidneys. The liver may at least fight back a little being our only organ that can regenerate itself. Let’s face it though I’m on a path to cirrhosis and renal failure. The other problem with all these meds, is their longer term effects on the nervous system. Gradual decline in nerve function, memory loss and neurodegeneratiin await.

Did I mention the Orlistat? (now that’s my pancreas gone}, and the purging. It’s sooo harsh on my guts, my oesophagus and throat. Oesophageal and colon damage, and disordered eating won’t help my nutrition state. I just crave carbs!!

To sum up, I’m always tired and am full off aches and pains, and the colour off my pee is concerning. I’m muddling along with all those things but they will kill me……..

I’m comfortable with dying young. That’s the saddest thing off all.

Loopy x

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443. I eat……

Because I’m hungry, and then I puke because I’m fat, then I eat because I’m hungry and then I puke because I’m fat…..

Realistically, how long can a person keep doing this?

Loopy x

430. A busy week

This week my niece (9) and nephew (5) are up staying with us. What have I let myself in for!! In truth, they are very good kids, well mannered and great with little man. But the noise, oh my god the noise!!! They are most definitely the loudest kids in Ireland!!!

Noise is something myself, OH and little man struggle with. Especially little man, who often holds his hands over his ears. I’m still concerned about him, to be honest. He’s very very sensitive to noise and I swear he has OCD. Can a child off 3, have OCD?

In other news, I’ve been building… Base frame and 1 wall frame done, with other timbers cut ready for assembly. I’m actually really enjoying this carpentry malarkey. Who knows, I may quit academia and live the quiet life, building crap out off wood, and selling it at a loss (proper stuff is quite expensive)

Finally, I have my psychology assessment tomorrow. I’ve no idea where to start or what my priorities are. I’m hoping it’s quite a structured chat. I’m nervous. What if they say; ‘you’re not suitable?”

I’m terrified off lockdown easing, I’m scared little man is damaged, I’m self harming, using diazepam in excess at night, abusing Orlistat and generally, I’m just messed up.

Where should we start………

Loopy x

425. Malin head to Mizen head.

I’ve not had the motivation to cycle lately.  I’ve been lazy, lethargic and just blah  

Work wise we are operating through MS teams and I know some of my colleagues like to cycle so I’ve set us a challenge. 

How fast can we as a group cover the length of beautiful ireland.  I’d kind off forgotten we’re all in academia, which means that we’re quite a competitive bunch. 

The race is on to do the 581 km, not just as a group, but Individually!!!

Hell yeah, I’m competitive!! It’s just what I needed to get me pedalling again.  16km down, only 565 to go!!

Loopy x

419. Red in the face..Literally!!

What happens when you mix glorious sunshine, with quietiapine and albinism??
Lobster Loopy, that’s what   I went for a bike ride today, but stupidly forgot to apply my factor 50.  I’m growing redder by the minute.

The worst part is scorching the backs of my hands as any movement at all stretches and pulls at the skin.

34 odd years with albinism and a few years on quietiapine, you think I’d know better.

On a side note, I’m really really really missing C and L today. I had my first phone contact with my new care coordinator this afternoon.  They prefer the term key workers over here.  I think it’s because the title of care co-ordinator could be taken up with trading standards!!! They coordinate f$%k all. 

To quote directly I was told” it’s not like I’ll be ringing you every week, I’ll review you in a month”

Can please please PLEASE have L or C again……

Loopy x

418. The black dog.

He’s been sniffing around today I can’t explain it, but my body feels tense and on edge. My mind feels useless and scatty. My future looks hopeless and worthless.

I hate when I feel like this. I want to buy pills, I’m toying with self harm. I’ve thrown up. I’m slipping somewhat and it scares me.

Just go to bed loopy. No buying pills, no self harm, no undoing the progress you’ve made lately.

Just go to bed!!

Loopy x

416. On bad days.

On days like this, I want to stay in bed.  I want to avoid the world and be alone.  I blog on bad days.
Here’s the thing though. I’ve had more good days lately, than bad.  I should be writing about those.

This past week I’ve been reducing my zopiclone and diazepam usage. I’ve been playing with and loving little man.  I’ve been productive work wise, and have even 99% landed an external examiner post.  I’ve been on my bike, I’ve been cuddling with OH.  I’ve been having argument free chats with dearest sister.  I’ve been puking less and no self harm.  I’ve been doing well.

The reality here is that, to some extent COVID lockdown is giving me breathing space, a chance to bond, a chance to reset.

Today was a bad day, but the week has been good.

Focus on the good!!!
Loopy x

415. A better place.

I don’t precisely know why, but I’m feeling better. I think my combo of meds is working.  I think the good weather is uplifting and I think I’m gaining confidence with little man. 
I need now to wean off my zopiclone and diazepam but I’ve been doing it slowly since coming home from hospital.  I’ve not self harmed in ages, and I’ve not been purging anywhere near as much as usual.

I’m just in a better place, and it feels good.  I hope I can sustain this and have more good days  

Now if I could only sort out my sleep. The meds combo is working during the day, but oh my word I’m having night terrors! and incredibly scratchy painful dry eyes.

One day at a time Loopy.  You’ll read this saying alot as it is my new mantra.

Loopy x