433. Muddy madness.

I’m building again. I’d been looking at mud kitchens for little man before.

Today, I’ve gone ahead and built one.. It’s not quite finished, but he seems to like it.

Now loopy, focus on your actual job for a few days. No more excuses!!

Loopy x

432. It’s not just me……..

I’m not the only one in this house who suffers from depression. This past few years, I’ve probably made things all about me. I’ve been the one in and out of hospital. I’ve been the one who cries, complains off stress, anxiety and unstable moods. I’ve been the one under the care of a community team (well I used to be.. I couldn’t call it “care” over here).

The reality, one that I’ve known for some time is that it’s not just me who suffers. OH has struggled too since the arrival of little man. OH is always tired, distant and short tempered. His mood affects mine, and more worryingly our moods affect little man. OH snaps and swears and withdraws. He exhibits most off my symptoms.

It’s not fair on him, it’s not fair on me and it’s not fair on little man.

I’ve been selfish, but if we’re to survive as a family, it’s time we addressed the elephant in the room.

Loopy x

430. A busy week

This week my niece (9) and nephew (5) are up staying with us. What have I let myself in for!! In truth, they are very good kids, well mannered and great with little man. But the noise, oh my god the noise!!! They are most definitely the loudest kids in Ireland!!!

Noise is something myself, OH and little man struggle with. Especially little man, who often holds his hands over his ears. I’m still concerned about him, to be honest. He’s very very sensitive to noise and I swear he has OCD. Can a child off 3, have OCD?

In other news, I’ve been building… Base frame and 1 wall frame done, with other timbers cut ready for assembly. I’m actually really enjoying this carpentry malarkey. Who knows, I may quit academia and live the quiet life, building crap out off wood, and selling it at a loss (proper stuff is quite expensive)

Finally, I have my psychology assessment tomorrow. I’ve no idea where to start or what my priorities are. I’m hoping it’s quite a structured chat. I’m nervous. What if they say; ‘you’re not suitable?”

I’m terrified off lockdown easing, I’m scared little man is damaged, I’m self harming, using diazepam in excess at night, abusing Orlistat and generally, I’m just messed up.

Where should we start………

Loopy x

424. A happy childhood memory.

I don’t really remember much from my childhood, and the memories I do have are always negative.

Left alone at a young age with my sister. Lists of chores that had to be completed or else!!! Cooking, cleaning, lighting fires, and sibling rows that would rival Ali’s rumble in the jungle.. We were alone, and I was beat up regularly, and shit scared to ever tell.

But I’ve remembered something good. I give myself a hard time, because with my crappy sight, I struggle to read bedtime stories for little man. It’s hard to find good books with insanely large text. So I’ve changed tactic, and have started making up stories, that see him as a big strong robot getting into all kinds off adventures, fighting sharks and dinosaurs, rescuing friends from fires, racing cars and well basically anything that I can bring to mind ad hoc.

By doing this, it suddenly dawned on me, that my sister used to do the same for me. Our parents never read us bed time stories, and my sister’s sight is worse than mine, but frequently she’d make up tales about Lego men and their crazy adventures, and you know what; I’m thankful for that.

As I’ve said, I have very few good childhood memories but this one has made me feel all warm and fuzzy

I’ll continue telling tales for little man.

Loopy x

423. Why do I do it to myself.

I’ve been struggling. In truth I’m stressed with work,and when I’m stressed, I quickly lose my ability to cope.

OH is working a long day, so it’s just been me and little man. I found it hard to cope. I shoved my eyepad before his eye as much as I could. I avoided him, I grew frustrated with him, and in turn he grew whiney, and clingy.

Its not his fault, it’s mine. So this evening I’ve given in to temptation, I’ve done what I needed to do, to get me through today.

It hurts now. Why do I do this to myself.

Loopy x

422. Damn it Loopy!!

Last night, for the first time in about 2 years, I slept without any zopiclone.  It was a huge achievement, one that I wanted to continue tonight…. but no, I’m a dumbass and I’ve taken 7.5mg.  In truth I want 15!

It was OH’s birthday today and his folks held a little party, cocktail sausages and all 

It’s been the most social interaction we’ve had, and I felt very uncomfortable.  This evening I feel tense and stressed and annoyed at myself for feeling uncomfortable.  We also ate alot of junk and I’m feeling fat, fat FAT!!!

I don’t want lockdown to end, but it will, and I’ll have to face people again, and busy places, and gauping eyes and aaaaggggghhhhhhhh!!!!!

I want to hide away forever…. 😦

Loopy x

421. A lung buster!!

I’m back on the roads, pumping pedals as hard as I can and sweating buckets!!!
I did probably 18 miles today in scorching heat.

I got stuck behind two ladies kitted in lycra and obviously road bike fanatics, and I must admit I felt a little smug being able to keep up with them.

Anyone who knows me, knows that I’m competitive, often to my own detriment, so let’s face it I wasn’t going to let them get out of sight!! But nonetheless it boosted my endorphins.

I know this routine by now, June, July I’ll be energised, I’ll cycle, I’ll cope and I’ll improve and then come August BLAM!!! I’ll start to crash. 

It’s a pattern, one that  I’ve never really discussed but one that is ingrained by now.

So while this lasts I’ll enjoy the little mood boosts, and continue to cycle harder and faster.

Oh by the way, I’m nearly off the zopiclone.  I’ve gone it alone (I had to!!, there’s no help here!!) and Im coping.  3.75mg / night.  This is the lowest dose I’ve been on in nearly 2 years. 

Oddly, lockdown is suiting me, I’m liking hiding away, not seeing ppl, not showering (gross I know) and lounging in football tops. I’m scared of coming out of it

Come on Loopy, keep your head up!!

Loopy x

420 My love you….

“My love you too Mammy”…………. On days like today, little man, just melts my heart.  He’s Mammys boy through and through. 

The sun is scorching, our paddling pool is out, and little man is full of laughter and joy.  He had a little naked protest earlier.  How does one explain to a 3 year old that no one wants to see his bear bum or willy???

The other day we went to a garden centre and as strangers approached, little man stomped one foot out in front of himself, flung his two arms in the direction of the strangers, palms out and declared, at the top of his vouce; “stand back!!!” 

It was pretty hilarious but it got me thinking about the effects of COVID on our little people.

Lots of things from my childhood and beyond affected my emotional development.  I do wonder will COVID’s rein of terror live beyond the life cycle of the virus, in the form of children afraid to be near, afraid to hug, afraid to love one another……….

I know it’s necessary right now, but when strangers cross the street or hide in alleys or whatever in an attempt to stay 2 metres from me, it makes me feel somehow defective, something to be feared.

Its not nice, and it’s certainly not a culture I want to in still in little people.

Loopy x

419. Red in the face..Literally!!

What happens when you mix glorious sunshine, with quietiapine and albinism??
Lobster Loopy, that’s what   I went for a bike ride today, but stupidly forgot to apply my factor 50.  I’m growing redder by the minute.

The worst part is scorching the backs of my hands as any movement at all stretches and pulls at the skin.

34 odd years with albinism and a few years on quietiapine, you think I’d know better.

On a side note, I’m really really really missing C and L today. I had my first phone contact with my new care coordinator this afternoon.  They prefer the term key workers over here.  I think it’s because the title of care co-ordinator could be taken up with trading standards!!! They coordinate f$%k all. 

To quote directly I was told” it’s not like I’ll be ringing you every week, I’ll review you in a month”

Can please please PLEASE have L or C again……

Loopy x

416. On bad days.

On days like this, I want to stay in bed.  I want to avoid the world and be alone.  I blog on bad days.
Here’s the thing though. I’ve had more good days lately, than bad.  I should be writing about those.

This past week I’ve been reducing my zopiclone and diazepam usage. I’ve been playing with and loving little man.  I’ve been productive work wise, and have even 99% landed an external examiner post.  I’ve been on my bike, I’ve been cuddling with OH.  I’ve been having argument free chats with dearest sister.  I’ve been puking less and no self harm.  I’ve been doing well.

The reality here is that, to some extent COVID lockdown is giving me breathing space, a chance to bond, a chance to reset.

Today was a bad day, but the week has been good.

Focus on the good!!!
Loopy x